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Journey into the world of hyperemesis gravidarum...
08Dec 17

Grandmother's blog

Our lovely granddaughters are now 6 and 3 and I had intended to write this a very long time ago. However, one thing about HG is that memories do not fade very quickly, if at all. I may have forgotten some of the small details but the rest of it is as clear in my mind as if it had only happened yesterday. It may sound dramatic to say that at times I feared that my daughter might just fade away out of her life in front of my eyes, and in modern times I don't think this would happen.....but I'm sure I am not alone in struggling to believe during those years that life would ever be normal again.

It was my sister who first mentioned the H word! Our whole family had been overjoyed to hear the news that my daughter Fiona and her husband, were expecting their first child, and I could barely contain my excitement at the thought of being a grandmother!

Then it all started.

Fi was suffering from 'morning sickness' but from the outset it seemed to be something rather more. Was it really normal to be so relentlessly sick all day, for her to be climbing up stairs on hands and knees because she was so weak, to be unable to keep even water down, and to be barely able to communicate with us? 

Her job as a physio became a daily nightmare, and then impossible to maintain. I drove her to the GP and she was told that she was just unlucky. Some women are more sick than others. So we carried on and then the phone call came from my sister who had been surfing the internet for information and found out about HG.

She said 'Fi has got hyperemesis'...and it was such a defining moment.

All of a sudden there was a reason for what was happening - it had a name and maybe there was a cure. Unfortunately, this was not of course, the case! I will not forget the day Fi saw a different GP in her practice after she had been many times seeking help and been dismissed. A lovely lady who listened to her, tested her urine sample sky high with ketones, and told her she needed to go to hospital. Fi cried, and I cried with her. Relief that someone was listening at last. T

his was just the beginning of endless visits to hospital, always through A and E, which we weren't allowed to bypass, even though we knew what was wrong and where we would end up. Hours sitting with what Fi's brother crudely called 'the vom kit'!!....the cardboard hat, a plastic bag, wet wipes and a pile of kitchen towel. Other patients gave us a wide berth, clearly thinking she had some terrible gastric disease. It was so difficult for Fi to wait for for long periods to be seen...very much a low priority in the triage system..... either feeling desperately sick or actually throwing up.  I used to feel so utterly desperate and powerless as she either tried to lie down or put her head on her knees, saying nothing. The end result was always 48 hours in a ward on a drip, at which point she was able to manage a little to eat and looked very much better. 24 hours after leaving hospital we were back where we started.

My son in law is a surgeon and was very keen to keep her out of hospital! I had decided that the best thing was for the two of them to move in with us, so I could look after both, and I would often come home to find a drip rigged up from a curtain rail in our makeshift hospital!! I would serve Fi food  in egg cups, coffee cups and saucers in teeny weeny quantities.  She even struggled to eat these. Most of the time she was unable to cope with the light and lay in a dark room, only getting out of bed to crawl to the bathroom. Smells of all kinds were a nightmare for her, as I subsequently discovered is common among HG sufferers. We had to abandon cooking and live on cold food, and I wasn't allowed to wear perfume or have flowers in the house! Even the smell of water could start the' vom' process!! Amazingly the result of this terrible ordeal was Charlotte - weighing a little under 7lbs and in perfect working order. Truly a miracle!

Pregnancy number 2 was a leap of faith, in the hope that things might not be as bad the second time.

Sadly they were worse! I had never felt that Fi regained her strength fully after the first pregnancy, and there seems to be very little mentioned about the physical and mental health of new Mums who have gone through HG. Once the baby is born they seem to be viewed in the same way as any other woman who has given birth. The baby has arrived, the sickness is gone, all is well. The reality as I saw it very clearly, was a young woman with a body very weakened by her long ordeal, and a mind traumatised to a degree by it as well.

Had someone been that ill for so long with a disease not connected with pregnancy, it would have been considered necessary for that person to spend time recuperating and regaining strength. HG sufferers do not have that consideration, although perhaps six years on things have improved?

Of course pregnancy 2 brought another dimension to the problem in the form of a two year old child needing care, and a Mother too ill to give it! I found myself in the role of both mother and grandmother for the greater part of the pregnancy....on the one hand a joy and on the other absolutely exhausting!  Between us we got through again, and Lucy was born safe and sound in March 2014. Unfortunately we were unaware that Fi had become osteopenic, and she  suffered a stress fracture of her pelvis. This gave her months of great pain following the birth and she was on crutches, again unable to care fully for her children. I felt upset yet again about the lack of care for these women before they embark on another pregnancy, and also post partum. This is not the case everywhere I know, and there are some marvelous GPs around who are doing great work for their HG patients.

Throughout these difficult years the PSS was a shining light of hope and support for us!

Caitlin, with her huge work load, was never too busy to chat, and to offer wonderful advice on both a professional and personal basis. With her medical knowledge as well as having gone through three HG pregnancies herself there can be no better person to have on the end of the phone!! She is still working tirelessly for the 'cause' and we can't thank her enough! I've been pleased to take part in the first two rounds of the Definition and Core Outcomes research project for HG which is being carried out currently, and very much look forward to reading the conclusions.

There will be no more babies for my daughter (!) but we will continue to support where we can, and hope that there is a better future ahead for all women who find themselves unexpectedly facing the longest nine months of their lives! 

 

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01Dec 17

Why to buy an HG Sufferer for Christmas

You’re making a list and checking it twice… but what do you get for the HG sufferer in your life who can’t leave the house, is triggered by smells and cant eat much apart from a tiny bit of toast?

Thanks to all of the wonderful ideas from Spewing Mummy followers on Facebook and Instagram I have compiled a list with some links that might be helpful in finding that perfect gift!

Pyjamas; as comfortable and soft as you can find to make those hours lying in bed a tiny bit more tolerable.

https://uk.hotmilklingerie.com/collections/sleep/products/my-darling-pj-set?variant=15195404870


Dressing Gown; to wrap up in if she does manage to get downstairs

http://www.jojomamanbebe.co.uk/nursing-robe-d5799.html

 

New bed linen; to ensure a healthy bedroom environment and to enjoy that clean bed sheet feeling for just a minute.

http://www.marksandspencer.com/pure-egyptian-cotton-230-thread-count-collection/p/ds2b15821653bd9192476020f9efdd35d9

 

Lip balm; not only helps lips to recover from dehydration but some sufferers like a scented lip balm to help cover up trigger smells (check triggers before you buy!)

Scent free lip balm

https://www.greenpeople.co.uk/scent-free-soft-lips-10ml

Peppermint lip balm

https://www.burtsbees.co.uk/product/beeswax-lip-balm/

 

A cosy pillow; to make sure she's as comfy as possible when bed or sofa bound

http://www.dunelm.com/product/fogarty-so-soft-cotton-pillow-pair-1000095319

 

Unscented candles; to help create a relaxing atmosphere.

https://www.stevalcandlecompany.co.uk/heart-multiwick-candle-unfragranced.html

 

Audio book app; to help pass the time

https://www.audible.co.uk/

 

DVD Box set; to help pass the time

https://www.tesco.com/direct/entertainment-books/dvd-blu-ray-box-sets/cat12590012.cat?source=others

 

Detangle brush; bushing her hair everyday can be a challenge, when she is able to a detangling one can help.

https://www.tangleteezer.com/all-brushes/detangling.html

 

Mediation / hypnobirthing cd or podcast; can aid relaxation

http://www.londonhypnobirthing.co.uk/shop/

 

Bubble bath; can help relaxation when a bath is possible (make sure there is someone to call if she needs to get out)

https://www.theremustbeabetterway.co.uk/humphreys-corner-fragrance-free-bubbly-bath.html

 

A pregnancy massage; can help relaxation if she has some respite from your symptoms

https://www.spafinder.co.uk/blog/find/treatments/massages/prenatal-massage/

 

A scrapbook of memories; so she can enjoy reminiscing and be reminded that this won’t last forever.

https://www.paperchase.co.uk/stationery/photo-albums-scrapbooks/scrapbooks/kraft-large-scrapbook.html

 

A bump to birth photo shoot; to remind her of the HG Hero she is

https://www.virginexperiencedays.co.uk/bump-to-baby-photoshoot-sp12

 

A 2018 diary; planning ahead could help remind her that HG will not last forever.

https://www.notonthehighstreet.com/catsprintshop/product/personalised-2017-journal-notebook

 

A soft knitted cotton blanket; to snuggle up in and keep her at just the right temperature

https://www.thewoolcompany.co.uk/aran-knitted-throw.html

 

Netflix; to help pass the time

https://www.netflix.com/gb/

 

A favourite magazine subscription; to help those hours pass by a little quicker

https://www.isubscribe.co.uk/

 

Hyperemesis Gravidarum The Definitive Guide: to help her feel informed and empowered

https://spewing-mummy.myshopify.com/products/hyperemesis-gravidarum-the-definitive-guide

 

Spewing Mummy Pregnancy Calendar; To help tick off those long days

https://spewing-mummy.myshopify.com/collections/main-products/products/spewing-mummy-pregnancy-calendar

Lactulose!

Maybe book a hairdresser to do a home visit.

Something to look forward too after the baby

A paid night out for the couple after the baby is born as relationships can suffer during hg

A cleaner!

 

And for the HG survivors...

Spend as much time together as a family as you can and make new memories... and possibly a spa day!

 

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The Book

Hyperemesis Gravidarum - The Definitive Guide by Caitlin Dean

The Kids Book

Hoe to be an HG Hero by Caitlin Dean

About Me

I am mother of three beautiful children and wife to a fantastic and supportive husband. I am a nurse, a farmer and a trustee for Pregnancy Sickness Support. I love working hard and spending time with my kids.

About this blog

Information and support for pregnancy sickness and hyperemesis gravidarum. Views are my own and do not represent those of any other organisation. Information provided here should not be a substitute for medical advice. My aim is to raise awareness and encourage sufferers to know they are not alone.

Previous award nominations

MAD Blog Awards UK 2015

 

VOTE FOR ME BiB 2014 COMMENTARY